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Our Mission

Provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.

About Us

Rare Disorders Kenya (RDK) is a patient led organization comprising of patients, parents and caregivers of persons diagnosed with rare diseases in Kenya.

Rare Diseases
in Kenya

In Kenya families with rare illnesses are facing extraordinary challenges. 

What are Rare

A rare disease is any disease that affects a small percentage of the population. They are often serious, chronic and progressive in nature.

The zebra has become a reference icon for a rare disease or condition.

Let's address the specific challenges of persons living with a rare disease and develop policies that promote the full participation and inclusion in to society while protecting the human rights of all people.
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