- We need more research to know how many Kenyans are affected by Rare Diseases, and create a database of Rare Diseases so that helping can be easy.
- Every year, we hold Rare Disease Day Kenya events to sensitize the country about Rare Diseases.
- We have developed a thriving online and in person peer to peer network of support
- We need to raise awareness and advocate for change in the society and the Government
We are volunteer based, and your donation goes directly into the programs and research. You don’t have to donate money, you can donate other resources and expertise.
To donate, please email us on email@example.com