Roselyn Kanja,
Co-founder

Roselyn Kanja has been actively involved with the rare disease community since her son was diagnosed with a rare disease in 2017. This unexpected journey, coupled with the desire to learn more, led to the co-founding of Rare Disorders Kenya.

She combines her career in design management with her desire to support and give back to the Kenyan community. Her passion and fire to help those with Rare Diseases has enabled her to create awareness about the growing problem within the country and beyond. She is dedicated to ensuring that people with rare disorders have access to the treatments and care they require.

Christine Mutena,
Co-founder

Christine Mutena is an immensely passionate advocate for rare diseases and special needs in Kenya and globally. These causes are deeply personal to her being a mother of two children, both of whom have non-related rare genetic conditions.

She is the founder of Step by Stones Association, and is also on the Patient Group Engagement Committee of the UK based Beacon for Rare Diseases (2021-2023 term).

Her life objective is to hone and use the skills and knowledge garnered through her personal and professional experiences to aid children living with disabilities live full independent lives with dignity.

Roselyn Kanja
Co-founder

Roselyn Kanja has been actively involved with the rare disease community since her son was diagnosed with a rare disease in 2017. This unexpected journey, coupled with the desire to learn more, led to the co-founding of Rare Disorders Kenya.

She combines her career in design management with her desire to support and give back to the Kenyan community. Her passion and fire to help those with Rare Diseases has enabled her to create awareness about the growing problem within the country and beyond. She is dedicated to ensuring that people with rare disorders have access to the treatments and care they require.

Christina Mutena
Co-founder

Christine Mutena is an immensely passionate advocate for rare diseases and special needs in Kenya and globally. These causes are deeply personal to her being a mother of two children, both of whom have non-related rare genetic conditions.

She is the founder of Step by Stones Association, and is also on the Patient Group Engagement Committee of the UK based Beacon for Rare Diseases (2021-2023 term). Her life objective is to hone and use the skills and knowledge garnered through her personal and professional experiences to aid children living with disabilities live full independent lives with dignity.

Elizabeth Kihuha
Board Member

Grace Njoroge is a trained geneticist, science communicator, STEM advocate, and Rare Disease advocate. In her line of work, Grace has engaged the public by fostering genetic literacy and explaining complex scientific concepts in plain, understandable language through articles and blogs.

Grace is presently working in the field of human genetics and navigating the uncharted waters of obtaining the certifications necessary to become the first certified Genetic Counselor in Kenya.

She is also interested in mentoring, particularly for young girls.

Roselyn Kanja has been actively involved with the rare disease community since her son was diagnosed with a rare disease in 2017. This unexpected journey, coupled with the desire to learn more, led to the co-founding of Rare Disorders Kenya. <br><br>

She combines her career in design management with her desire to support and give back to the Kenyan community. Her passion and fire to help those with Rare Diseases has enabled her to create awareness about the growing problem within the country and beyond. She is dedicated to ensuring that people with rare disorders have access to the treatments and care they require.

Christine Mutena is an immensely passionate advocate for rare diseases and special needs in Kenya and globally. These causes are deeply personal to her being a mother of two children, both of whom have non-related rare genetic conditions.<br><br>

She is the founder of Step by Stones Association, and is also on the Patient Group Engagement Committee of the UK based Beacon for Rare Diseases (2021-2023 term).

Her life objective is to hone and use the skills and knowledge garnered through her personal and professional experiences to aid children living with disabilities live full independent lives with dignity.

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